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BBC News, Washington DC
After Kim Visintine lying to her son every night at a hospital in St Louis, Missouri, spent her night in the hospital library. She was determined to know how her son had seriously ill with a rare brain tumor of only one week.
“The doctors were shocked,” she says. “They told us that their disease was one in a million. Other parents were learning to change diapers, but I was learning to change chemotherapy ports and IV.”
Kim’s son, Zack, was diagnosed with a multiform glioblastoma. It is a brain tumor that is very rare in children and is usually seen in adults over 45 years.
Zack had chemotherapy treatments, but doctors said there was no hope that he would recover. He died with only six years.
Years later, social networks and community talk made Kim begin to think that his son was not an isolated case. Perhaps it was part of a bigger image that grew in its community that surrounds Coldwater Creek.
In this part of the USA, Cancer fears have led the premises to accuse officials not to do enough to support those who may have been exposed to radiation due to the development of the atomic bomb in the 1940s.
A compensation program that was designed to pay some Americans who hired diseases after exposure to radiation expired last year, before it could spread to the St Louis area.
This Radiation Exposure Compensation Law (REC) provided unique payments to people who may have developed cancer or other diseases while living in areas where activities such as atomic weapons tests were carried out. He paid $ 2.6 billion (£ 2 billion) to more than 41,000 Claimers before reaching an end in 2024.
Among the covered areas were New Mexico, where the first world test of a nuclear weapon took place in 1945. The investigation published in 2020 by the National Cancer Institute suggested that hundreds of cancers in the area would not have occurred without exposure to radiation.
Meanwhile, St Louis was where uranium was refined and used to help create the atomic bomb as part of Manhattan’s project. After World War II ended, the chemist was thrown near the stream and left discovered, allowing the waste to leak in the area.
Decades later, federal researchers recognized a higher risk of cancer for some people who played in the stream when they were children, but added in their report: “The predicted increases in the number of exhibition cancer cases are small and there is no method to link a particular cancer with this exhibition.”
Cleaning of the stream is still ongoing and it is not expected to end until 2038.
A new bill in the Chamber has been presented, and Josh Hawley, an American senator who represents Missouri, says he has raised the problem with President Donald Trump.
When Kim moves through his school yearbook, he can identify those who have already gotten sick who have died. The numbers are surprising.
“My husband did not grow in this area, and he told me: ‘Kim, this is not normal. It seems that we are always talking that one of his friends dies or goes to a funeral,” he says.
Only streets away from the stream, Karen Nickel grew up spending her days near the water berries, or in the nearby park playing baseball. His brother often tried to fish in Credwater Creek.
“I always tell people that we only had fairy tale childhood that you would expect in what you consider suburban America,” says Karen. “Large rear courtyards, large families, children who play together until the street lights arrived at night.”
But years later, his childhood concern is now very different.
“Fifteen people with which I grew up died of rare cancers,” she says. “We have neighborhoods here where each house has been affected by some cancer or some disease. We have streets where you cannot find a house where a family has not been affected by this.”
When Karen’s sister was only 11 years old, doctors discovered that her ovaries were covered with cysts. The same had happened to his neighbor when he was only nine years old. Karen’s six -year -old granddaughter was born with a Mass in her right ovary.
Karen helped to find Just Moms Stl, a group dedicated to protecting the community from future exhibitions that could be linked to cancers, and advocates for a cleaning of the area.
“We receive messages every day from people suffering from diseases and questioning whether this is by exposure,” she says. “These are very aggressive diseases that the community is obtaining, from cancers to autoimmune diseases.”
Teresa Rumfelt grew only one Karen street and lived in her family’s house from 1979 to 2010. Remember that each of her animals died of cancer and her neighbors became ill of rare diseases.
Years later, her sister through Von Banks was diagnosed with amyotrophic lateral sclerosis (ALS), a form of motor neurons disease. Some medical studies have suggested that there could be a link between radiation and ELA, but this is not definitive, and more research is needed to reaffirm it.
That does not reassure people as Teresa who worries that they need more to understand how the premises are being affected.
“Als took my sister at 50,” says Teresa. “I think it was the worst disease of humanity. When she was diagnosed in 2019, she has just launched her career and her children were growing. She remained positive throughout everything.”
Like Hawley, only STL Moms and other community members want the Government Compensation Law to be extended to include people within the St Louis area, despite the fact that the program is in Limbo after expiring.
Expanding it to the Creek Creek community would mean that the locals could be offered compensation if they could prove that they were damaged as a result of the Manhattan project, during which the atomic bomb was developed with the help of uranium processing in ST Louis. It would also allow detection exams and more studies on diseases other than cancer.
In a statement to the BBC, the United States Government Environmental Protection Agency (EPA) said that they were taken very seriously and that he had actively worked with federal, state and local partners, as well as the members of the community, to understand their health concerns and to ensure that community members were not exposed to the waste of the Era of the Manhattan project.
The BBC has also contacted the US Army Engineers.
“My sister would have loved to be part of the fight. She would be the first picket,” says Teresa about her efforts to obtain greater government support.
The tendency in which people in Credwater Creek have worry have not gone unnoticed among health professionals.
Dr. Gautum Agarwal, a surgeon against cancer at the Mercy hospital in St Louis, says he has not noticed anything of “statistical thing”, but points out that he has seen husbands and wives and his neighbors presenting cancers.
Now, he assures that his patients are asked where they live and how close they are from Credwater Creek.
“I tell you that there is a potential that there is a link. And if your neighbors or relatives live close to there, we should project them more frequently. And maybe you should project your children before.”
He hopes that over time more knowledge about the problem will be obtained, and for a study on early detection tests of multiple cancer that will be introduced to help catch any possible cancer and help to reassure people in the area.
Other experts have a different vision of risks. “There is a narrative that many people are sick of cancers, specifically from the exhibitions while living next to Creek Creek during the last decades,” says Roger Lewis, a professor at the Department of Environmental Health and Occupations at the University of St Louis.
“But the data and studies do not indicate that. They show that there is some risk, but it is small. It does not mean that it is not significant in some way, but it is very limited.”
Professor Lewis recognizes fear in the community, saying that the locals will feel more secure if the government is clearer about their efforts to eliminate any danger.
For many people near Coldwater Creek, the conversation with the authorities is not relieved the anguish that comes with living in an area known for the spill of nuclear waste.
“It is almost a fact in our community that at some point we all hope to have some type of cancer or disease,” says Kim Visintine. “There is almost this apathy within our group that, well, is just a matter of time.”